Privacy Policy

Who we are

We Are the Cotswold Downs Syndrome Group (Friends of Daniella).  Our website address is:

We are a registered UK Charity – Registered Charity number 1134341.

What personal data we collect and why we collect it

Membership forms

Membership forms are given to new members which hold personel details of the families and are required in order for us to maintain communication with members by them opting in to the services that we provide.  Membership forms can be found at all events that we attend, on this website (click here to download a copy) or requested by the contact us page.  Completed forms can be given in by hand or emailed to us at


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.


Images can be shared with us and used on this site.  Users should avoid sharing images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.

Contact forms

User are able to contact us by entering their details on a contact form at:

This information will be sent Via email to the charity, information will be stored securely and contact information will be used to reply to any questions.

Charity Members

When members join the charity they will complete a membership form, this will be stored in a secure location and not be shared with any other parties.

Contact information will be added to the following services when opted in –

MailChimp – This will include your email information to receive newsletters, event information and other communications via email from the charity only. To unsubscribe from email communication please click unsubscribe at the bottom of the emails or contact IT support via the contact us page. For more information regarding how MailChimp will handle your data please visit their privacy policy – 

TextLocal – This will include mobile contact information to receive newsletters, event information and other communications via email from the charity only. To unsubscribe from text communication please click visit or Text DAX8FSTOP to 60777. If you require support or confirmation please contact IT support via the contact us page. For more information regarding how TextLocal will handle your data please visit their privacy policy –

If you have any questions or would like your membership information removed, please get in touch via our contact form or email


If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracing your interaction with the embedded content if you have an account and are logged in to that website.

We currently use Facebook and Instagram.  Please visit their sites in order to check their Privacy policies.


We do not currently employ any analytics.

Who we share your data with

Your data is not shared by us with anybody else without prior permission and confirmation.

How long we retain your data

Any data that is entered and/or displayed shall be retained indefinitely. Only Website administrators can edit information.

What rights you have over your data

Users can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service.

Additional information

How we protect your data

What data breach procedures we have in place

In the event of a data breach all members shall be notified.

What third parties we receive data from

We may receive information from

About Us

We are a friendly group providing support to individuals and families whose lives are touched by Downs Syndrome.

Join our online community
Charity Details

Get in touch –

Registered Charity: 1134341